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European Dystonia Federation (EDF)
Is European Dystonia Portal for all related organisations to share resources. Comments: 0; Added: 04-10-2007)
http://www.dystonia-europe.org/ -
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Dystonia Medical Research Foundation (DMRF)
DMRF was founded in 1976, the organization dedicated to serving all people with dystonia and their families. Since its inception, the DMRF has grown from a small family-based foundation into a dynamic membership-driven organisation led by a Board of Directors and network of volunteers with personal connections to dystonia. Because dystonia hits so close to home for our directors and volunteers, the DMRF leadership is motivated by an unrelenting drive to find a cure and an unwavering commitment to serving people affected by dystonia. Comments: 0; Added: 04-10-2007)
http://www.dystonia-foundation.org/ -
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Dystonia Society (DS)
DS was first established by a small group of people who had various forms of dystonia, in 1983.Its initial aims were to provide mutual support for those affected by dystonia, and to raise awareness of the condition, particularly among the medical profession, through education and the promotion of research. It first became a registered charity in 1984, and its principal aims and objectives have remained the same throughout the past twenty years. Dystonia is a neurological movement disorder. It causes involuntary muscle contractions which lead the affected parts of the body to develop abnormal movements or postures, with or without tremor. There are estimated to be 40,000 people living with dystonia in the UK Comments: 0; Added: 04-10-2007)
http://www.dystonia.org.uk/ -
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Dystonia-Support4u (DS4U)
DS4U provides a resource for those suffer from Dystonia - in any shape or form. It is appreciated that many people with Dystonia may not have access to/be able to use an internet-connected PC. In view of this, one of the projects undertaken by this site is to produce a book that will be distributed - totally free of charge - to all those unable to access the vast range of information about Dystonia that is available on the internet. Comments: 0; Added: 04-10-2007)
http://www.dystonia-support4u.com/ -
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