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International Federation for Spina Bifida and Hydrocephalus (IF)
It was created in 1979 by national organisations of people with these impairments and their parents. Today IF's membership consists of 32 regional and national umbrella organisations for Spina Bifida and Hydrocephalus. Further, IF has an intense contact with regional and national organizations in over 50 countries, spread over five continents.IF aims to disseminate information and expertise throughout the world to families, individuals, professionals and volunteers involved in the Hydrocephalus and Spina Bifida field.
Comments: 0; Added: 02-10-2007)
http://www.ifglobal.org/ - Details

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Association for Spina Bifida and Hydrocephalus (ASBAH)
ASBAH's vision is a future where everyone with spina bifida or hydrocephalus can get the most out of life.They provide information and advice about spina bifida and hydrocephalus to individuals, families and carers.
Comments: 0; Added: 02-10-2007)
http://www.asbah.org/ - Details

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